National Cancer Information Service in Italy: an information points network as a new model for providing information for cancer patients.

نویسندگان

  • Ivana Truccolo
  • Rosaria Bufalino
  • Maria Antonietta Annunziata
  • Anita Caruso
  • Anna Costantini
  • Gaetana Cognetti
  • Antonio Florita
  • Dina Pero
  • Patrizia Pugliese
  • Roberta Tancredi
  • Francesco De Lorenzo
چکیده

The international literature data report that good information and communication are fundamental components of a therapeutic process. They contribute to improve the patient-health care professional relationship, to facilitate doctor-patient relationships, therapeutic compliance and adherence, and to the informed consent in innovative clinical trials. We report the results of a multicentric national initiative that developed a 17-information-structure network: 16 Information Points located in the major state-funded certified cancer centers and general hospitals across Italy and a national Help-line at the nonprofit organization AIMaC (the Italian oncologic patients, families and friends association), and updated the already existing services with the aim to create the National Cancer Information Service (SION). The project is the result of a series of pilot and research projects funded by the Italian Ministry of Health. The Information Service model proposed is based on some fundamental elements: 1) human interaction with experienced operators, adequately trained in communication and information, complemented with 2) virtual interaction (Help line, Internet, blog, forum and social network); 3) informative material adequate for both scientific accuracy and communicative style; 4) adequate locations for appropriate positioning and privacy (adequate visibility); 5) appropriate advertising. First results coming from these initiatives contributed to introduce issues related to "Communication and Information to patients" as a "Public Health Instrument" to the National Cancer Plan approved by the Ministry of Health for the years 2010-2012.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

A New Hybrid Feature Subset Selection Algorithm for the Analysis of Ovarian Cancer Data Using Laser Mass Spectrum

Introduction: Amajor problem in the treatment of cancer is the lack of an appropriate method for the early diagnosis of the disease. The chemical reaction within an organ may be reflected in the form of proteomic patterns in the serum, sputum, or urine. Laser mass spectrometry is a valuable tool for extracting the proteomic patterns from biological samples. A major challenge in extracting such ...

متن کامل

ارائه الگویی برای تقویت اثرات اقتصادی شبکه ملی اطلاعات

National Information Network is a local network and includes national data centers, communications infrastructure and software services. It will be deployed throughout the country, and provide e-government services and welfare and social services by optical fiber and broadband at 12 Mbps for Iranian people. Combination of national network and ICT lead to many direct and indirect impacts. The di...

متن کامل

Diagnosis of Breast Cancer using a Combination of Genetic Algorithm and Artificial Neural Network in Medical Infrared Thermal Imaging

Introduction This study is an effort to diagnose breast cancer by processing the quantitative and qualitative information obtained from medical infrared imaging. The medical infrared imaging is free from any harmful radiation and it is one of the best advantages of the proposed method. By analyzing this information, the best diagnostic parameters among the available parameters are selected and ...

متن کامل

Providing an Enterprise Architecture Framework Model for Laboratory Information Management Systems by Service Oriented Approach

Background and Aim: Laboratories are one of the most important scientific and research centers. Laboratory information management systems provide a platform for recording the information and collaborating between researchers. The main purpose of this study was suggesting an organizational architecture model of laboratory information management systems.  Materials and Methods: This study was a ...

متن کامل

The effect of Continuous Care Model on self-care in patients with colon cancer

Introduction: Colon cancer and its treatments have several signs and symptoms such as weakness, fatigue, lethargy, anorexia, nausea and vomiting, anemia, and eating disorders that self-care is essential to control in these patients. The aim of this study was to determine the effect of the continuous care model on self-care in patients with colon cancer. Methods: The present study was an experi...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Tumori

دوره 97 4  شماره 

صفحات  -

تاریخ انتشار 2011